Comments on: Death In The Family http://www.journal.clltopics.org/2008/06/24/death-in-the-family/ The Story of an Elective Cord Blood Stem Cell Transplant Wed, 08 Feb 2012 05:05:50 +0000 http://wordpress.org/?v=2.3.3 By: val http://www.journal.clltopics.org/2008/06/24/death-in-the-family/#comment-2098 val Tue, 22 Jul 2008 14:27:17 +0000 http://www.journal.clltopics.org/2008/06/24/death-in-the-family/#comment-2098 My husband has cll and is making a very troubled recovery from an autologous stem transplant Ive read your cll topics since he was dignosed 4 years ago and it has given me strength to support him through continuing ill health. Im so sorry to hear of your loss--your man was so brave to trial this new proceedure but as I know too well these things dont always work out.Thank you so much for all your valiant efforts for cll sufferers over so many years.I do hope that all the support you are getting will help just a little to feel that you and your husbands battle has not been in vain. My husband has cll and is making a very troubled recovery from an autologous stem transplant Ive read your cll topics since he was dignosed 4 years ago and it has given me strength to support him through continuing ill health. Im so sorry to hear of your loss–your man was so brave to trial this new proceedure but as I know too well these things dont always work out.Thank you so much for all your valiant efforts for cll sufferers over so many years.I do hope that all the support you are getting will help just a little to feel that you and your husbands battle has not been in vain.

]]> By: John http://www.journal.clltopics.org/2008/06/24/death-in-the-family/#comment-1941 John Mon, 14 Jul 2008 23:24:19 +0000 http://www.journal.clltopics.org/2008/06/24/death-in-the-family/#comment-1941 Dear Chaya, I'm deeply sadden to hear of Harvey's passing. You and your family have suffered a great loss of the great man you loved so very much. You have both been an inspiration to me. You have helped myself and others more than you will probably ever know. You will be in my prayers. John Dear Chaya,

I’m deeply sadden to hear of Harvey’s passing. You and your family have suffered a great loss of the great man you loved so very much. You have both been an inspiration to me. You have helped myself and others more than you will probably ever know. You will be in my prayers.

John

]]> By: Jo Bunkenburg http://www.journal.clltopics.org/2008/06/24/death-in-the-family/#comment-1767 Jo Bunkenburg Thu, 10 Jul 2008 20:33:22 +0000 http://www.journal.clltopics.org/2008/06/24/death-in-the-family/#comment-1767 Dear Chaya, My heart goes out to you and Radha for your loss. What shone and shines through CLL Topics through the years and even now, is your unwavering love for P.C. and undeterred hope for the future. “The transplant had taken hold, and prednisone seemed to hold the slight fever” That was last news that I read before being away from your web-site for a while. I am so sorry for this turn of events. Jo Bunkenburg Dear Chaya,

My heart goes out to you and Radha for your loss.
What shone and shines through CLL Topics through the years and even now, is your unwavering love for P.C. and undeterred hope for the future.

“The transplant had taken hold, and prednisone seemed to hold the slight fever”
That was last news that I read before being away from your web-site for a while.
I am so sorry for this turn of events.

Jo Bunkenburg

]]> By: lihaina.lady http://www.journal.clltopics.org/2008/06/24/death-in-the-family/#comment-1700 lihaina.lady Tue, 08 Jul 2008 15:27:44 +0000 http://www.journal.clltopics.org/2008/06/24/death-in-the-family/#comment-1700 Dear chaya, As the wife of another CLL patient, we have been dealing with it now for 3 years that we have been aware of his disease. I have given several of your articles to our hematologist and he was impressed. Larry is still in Stage 0 and I hope he stays that way. We feel that the ECGC candy that "Harvey" told us about is helping. I only wish that you had more years with your husband. My heart breaks for you and your family and I am so every grateful for the information that you shared that is helping us. Pat and Larry Dear chaya,

As the wife of another CLL patient, we have been dealing with it now for 3 years that we have been aware of his disease. I have given several of your articles to our hematologist and he was impressed. Larry is still in Stage 0 and I hope he stays that way. We feel that the ECGC candy that “Harvey” told us about is helping. I only wish that you had more years with your husband. My heart breaks for you and your family and I am so every grateful for the information that you shared that is helping us.

Pat and Larry

]]> By: Bill from Maine http://www.journal.clltopics.org/2008/06/24/death-in-the-family/#comment-1686 Bill from Maine Mon, 07 Jul 2008 18:23:23 +0000 http://www.journal.clltopics.org/2008/06/24/death-in-the-family/#comment-1686 Thank you, PC, for fighting the good fight. And thank you, Chaya, for sharing this wonderful man with us. You and your family are in our thoughts and prayers. You've done so much for those of us with CLL, more perhaps than you'll ever know. God bless. Bill Thank you, PC, for fighting the good fight.

And thank you, Chaya, for sharing this wonderful man with us. You and your family are in our thoughts and prayers. You’ve done so much for those of us with CLL, more perhaps than you’ll ever know.

God bless.

Bill

]]> By: mountainwalker http://www.journal.clltopics.org/2008/06/24/death-in-the-family/#comment-1598 mountainwalker Wed, 02 Jul 2008 22:24:02 +0000 http://www.journal.clltopics.org/2008/06/24/death-in-the-family/#comment-1598 i am so sorry to hear the news about pc , i really feel for you and i feel for him . i read your stuff all the time as a support and i forward your brilliant thoughts to friends who need support and even though i am involved with non hodgkins lymphoma everything that you cover is relevant . thankyou for you combined spirit and courage and sharing keep strong chaya you are inspirationa;l i send you love and support at a shocking and difficult time no one can ever prepare for this kind of moment xxxxxxxxxxxxxxxxxxxxxxxxx max i am so sorry to hear the news about pc , i really feel for you and i feel for him . i read your stuff all the time as a support and i forward your brilliant thoughts to friends who need support and even though i am involved with non hodgkins lymphoma everything that you cover is relevant .

thankyou for you combined spirit and courage and sharing

keep strong chaya

you are inspirationa;l

i send you love and support at a shocking and difficult time
no one can ever prepare for this kind of moment

xxxxxxxxxxxxxxxxxxxxxxxxx
max

]]> By: Ed Auxer http://www.journal.clltopics.org/2008/06/24/death-in-the-family/#comment-1597 Ed Auxer Wed, 02 Jul 2008 21:24:21 +0000 http://www.journal.clltopics.org/2008/06/24/death-in-the-family/#comment-1597 Since reading you email to me on June 26, I have tried each day to write a response that would bring you some solace. I kept writing drafts each day, and then reading them over the next, and always ended up discarding them as inadequate. There are no words that convey our sense of your loss and bring you real solace. You most of all, but the rest of us too, have suffered a great loss. P.C. and you have done so much for us. Please know that we mourn so deeply for P.C. and for you. Since reading you email to me on June 26, I have tried each day to write a response that would bring you some solace.

I kept writing drafts each day, and then reading them over the next, and always ended up discarding them as inadequate.

There are no words that convey our sense of your loss and bring you real solace. You most of all, but the rest of us too, have suffered a great loss.

P.C. and you have done so much for us. Please know that we mourn so deeply for P.C. and for you.

]]> By: Marilyn http://www.journal.clltopics.org/2008/06/24/death-in-the-family/#comment-1591 Marilyn Wed, 02 Jul 2008 14:50:53 +0000 http://www.journal.clltopics.org/2008/06/24/death-in-the-family/#comment-1591 Dear Chaya, I was never fortunate enough to meet either you or P. C., but through all your caring and sharing, you became friends. You have both been here to take our hands and provide us with comfort as we journeyed through an unknown world. Now, the many people you constantly encouraged and provided comfort to, are here to provide the same support and comfort to you and your family. My thoughts and prayers are with you and your family. We shall never forget P.C. Dear Chaya,

I was never fortunate enough to meet either you or P. C., but through all your caring and sharing, you became friends.

You have both been here to take our hands and provide us with comfort as we journeyed through an unknown world. Now, the many people you constantly encouraged and provided comfort to, are here to provide the same support and comfort to you and your family.

My thoughts and prayers are with you and your family. We shall never forget P.C.

]]> By: mlkalmus http://www.journal.clltopics.org/2008/06/24/death-in-the-family/#comment-1589 mlkalmus Tue, 01 Jul 2008 20:24:01 +0000 http://www.journal.clltopics.org/2008/06/24/death-in-the-family/#comment-1589 Dear Chaya, When I originally opened your e-mail telling of P.C.'s passing, I could not respond to it at that time and needed a few days to absorb it. My deepest sympathy. My husband and I have turned to CLL Topics as THE source for news and updates regarding this disease. Although my husband was only diagnosed about a year and a half ago and is currently asymptomatic, I have tried to stay current on any new treatments or information. It would have been very difficult to do without yours and P.C.'s dedication. Thank you for your gifts to all of us. I only hope that in time your pain will lesson and that the support from so many of your followers and friends will comfort you. Dear Chaya,

When I originally opened your e-mail telling of P.C.’s passing, I could not respond to it at that time and needed a few days to absorb it. My deepest sympathy. My husband and I have turned to CLL Topics as THE source for news and updates regarding this disease. Although my husband was only diagnosed about a year and a half ago and is currently asymptomatic, I have tried to stay current on any new treatments or information. It would have been very difficult to do without yours and P.C.’s dedication. Thank you for your gifts to all of us. I only hope that in time your pain will lesson and that the support from so many of your followers and friends will comfort you.

]]> By: bwebbrodz http://www.journal.clltopics.org/2008/06/24/death-in-the-family/#comment-1586 bwebbrodz Tue, 01 Jul 2008 16:15:48 +0000 http://www.journal.clltopics.org/2008/06/24/death-in-the-family/#comment-1586 Chaya, What a chaotic roller coaster of facts, emotions and physical condition to go through in such a short time. I'm hospitalized in the midst of scary post-transplant complications and my sister is riding these crazy ups and downs with me. I'm sorry everything changed so rapidly and you never got to talk more before he went into the coma. I'm shocked how things change so rapidly day to day. Thank you enormously for putting his and your experiences into the journal even when it was tough. I'm so sorry he died. Barbara, MD Anderson Chaya,
What a chaotic roller coaster of facts, emotions and physical condition to go through in such a short time. I’m hospitalized in the midst of scary post-transplant complications and my sister is riding these crazy ups and downs with me. I’m sorry everything changed so rapidly and you never got to talk more before he went into the coma. I’m shocked how things change so rapidly day to day. Thank you enormously for putting his and your experiences into the journal even when it was tough. I’m so sorry he died.
Barbara, MD Anderson

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