Comments on: Going No Where Fast http://www.journal.clltopics.org/2008/05/08/going-no-where-fast/ The Story of an Elective Cord Blood Stem Cell Transplant Wed, 08 Feb 2012 05:06:38 +0000 http://wordpress.org/?v=2.3.3 By: wendy http://www.journal.clltopics.org/2008/05/08/going-no-where-fast/#comment-808 wendy Wed, 14 May 2008 18:43:24 +0000 http://www.journal.clltopics.org/2008/05/08/going-no-where-fast/#comment-808 Hadn't noticed those type "A" personalities:) Thank you for the updates. It helps us to know what pieces of your journey we need to keep close, especially the part about maintaining your "well being" in the middle of all ups and downs. I can't imagine how it all feels. You both continue in my thoughts each day. Dig deep Chaya and please give PC my love. Wendy Hadn’t noticed those type “A” personalities:)

Thank you for the updates. It helps us to know what pieces of your journey we need to keep close, especially the part about maintaining your “well being” in the middle of all ups and downs. I can’t imagine how it all feels. You both continue in my thoughts each day.

Dig deep Chaya and please give PC my love. Wendy

]]> By: ondrea http://www.journal.clltopics.org/2008/05/08/going-no-where-fast/#comment-807 ondrea Wed, 14 May 2008 18:03:31 +0000 http://www.journal.clltopics.org/2008/05/08/going-no-where-fast/#comment-807 Chaya & Harvey thank you for giveing ,so many hope ..Everyone is praying for you both. love ondrea Chaya & Harvey
thank you for giveing ,so many hope ..Everyone is praying for you both.
love
ondrea

]]> By: Jaqui http://www.journal.clltopics.org/2008/05/08/going-no-where-fast/#comment-805 Jaqui Wed, 14 May 2008 13:16:10 +0000 http://www.journal.clltopics.org/2008/05/08/going-no-where-fast/#comment-805 Have been regularly checking your postings and like everyone else I have been rooting for Harvey and Serena. It is now two years since we met in the UK (you might remember me as the 'R-CHOP' lady). You both inspired me then and continue to do so as I contemplate my options after relapsing last year (5 rounds of FC). Love and best, best wishes to both of you. Jaqui Have been regularly checking your postings and like everyone else I have been rooting for Harvey and Serena. It is now two years since we met in the UK (you might remember me as the ‘R-CHOP’ lady). You both inspired me then and continue to do so as I contemplate my options after relapsing last year (5 rounds of FC). Love and best, best wishes to both of you.
Jaqui

]]> By: brian http://www.journal.clltopics.org/2008/05/08/going-no-where-fast/#comment-804 brian Wed, 14 May 2008 06:25:08 +0000 http://www.journal.clltopics.org/2008/05/08/going-no-where-fast/#comment-804 Chaya, Stay strong Brian Chaya,
Stay strong
Brian

]]> By: Beth and John http://www.journal.clltopics.org/2008/05/08/going-no-where-fast/#comment-777 Beth and John Tue, 13 May 2008 17:01:03 +0000 http://www.journal.clltopics.org/2008/05/08/going-no-where-fast/#comment-777 Hi Chaya: I have been crazy busy with an aunt dying in Chicago and my daughter graduating from her Master's Program in LA. So today I checked on you and Harvey. I am praying that things are on the upswing. I am relieved that there are always things that can be done, things that can make this work. Blessings on both of you, Beth and John Hi Chaya:

I have been crazy busy with an aunt dying in Chicago and my daughter graduating from her Master’s Program in LA. So today I checked on you and Harvey. I am praying that things are on the upswing. I am relieved that there are always things that can be done, things that can make this work. Blessings on both of you,

Beth and John

]]> By: Alex http://www.journal.clltopics.org/2008/05/08/going-no-where-fast/#comment-743 Alex Tue, 13 May 2008 04:53:46 +0000 http://www.journal.clltopics.org/2008/05/08/going-no-where-fast/#comment-743 Dear Chaya and Harvey, I hope by now the IVIG and other treatments are working and the fevers are down. Your courage and honesty are truly amazing and such a blessing to those of us dealing with this most mysterious disease. Sending you lots of healing energy. Alex Dear Chaya and Harvey, I hope by now the IVIG and other treatments are working and the fevers are down. Your courage and honesty are truly amazing and such a blessing to those of us dealing with this most mysterious disease. Sending you lots of healing energy.

Alex

]]> By: John http://www.journal.clltopics.org/2008/05/08/going-no-where-fast/#comment-742 John Tue, 13 May 2008 03:48:05 +0000 http://www.journal.clltopics.org/2008/05/08/going-no-where-fast/#comment-742 Thank you for the detailed and frank update on Harvey. I think of the two of you daily. The IVIG infusions are a very good idea - I've had monthly infustions since last July with no side effects, and most importantly few other problems - "knock on wood". Harvey can be thankful he has a great "care giver" - oh so important under these conditions. Thank you for the detailed and frank update on Harvey. I think of the two of you daily.
The IVIG infusions are a very good idea - I’ve had monthly infustions since last July with no side effects, and most importantly few other problems - “knock on wood”.
Harvey can be thankful he has a great “care giver” - oh so important under these conditions.

]]> By: Debbie said http://www.journal.clltopics.org/2008/05/08/going-no-where-fast/#comment-741 Debbie said Mon, 12 May 2008 18:07:46 +0000 http://www.journal.clltopics.org/2008/05/08/going-no-where-fast/#comment-741 Good luck on the IVIG infusions. You have lots of friends out here cheering you on. Look at what you have brought together in our same quest. Hoping for the best. You deserve it. Good luck on the IVIG infusions. You have lots of friends out here cheering you on. Look at what you have brought together in our same quest. Hoping for the best. You deserve it.

]]> By: Dan http://www.journal.clltopics.org/2008/05/08/going-no-where-fast/#comment-739 Dan Mon, 12 May 2008 06:54:00 +0000 http://www.journal.clltopics.org/2008/05/08/going-no-where-fast/#comment-739 I am struck by the similarities of "Harvey" and taking a young baby to the doctor for an earache and having the doctor say there is nothing to be done but to go home and let the virus run its course - easy for them to say as they are not staying up all night with child as they scream and cry with discomfort. I found this hard to take as a young parent. I am re-experiencing this frustration again with my CLL as my temp rises 2 degrees above normal each day and anti-biotics have not made any difference at all. Following along with the baby analogy and "Seattle Slim" I am so amazed that within 43 days of engraftment "Seattle Slim" is already 80% in charge, Wow! That is simply dramatic growth. Given that babies seem to take a while to develop immunities to their environment I am wondering if this process is in anyway relevant to the development of engrafted cord cells. My wife and I consider you and "Harvey" to be courageous pioneers and we gratefully hang on your every word. I am struck by the similarities of “Harvey” and taking a young baby to the doctor for an earache and having the doctor say there is nothing to be done but to go home and let the virus run its course - easy for them to say as they are not staying up all night with child as they scream and cry with discomfort. I found this hard to take as a young parent. I am re-experiencing this frustration again with my CLL as my temp rises 2 degrees above normal each day and anti-biotics have not made any difference at all. Following along with the baby analogy and “Seattle Slim” I am so amazed that within 43 days of engraftment “Seattle Slim” is already 80% in charge, Wow! That is simply dramatic growth. Given that babies seem to take a while to develop immunities to their environment I am wondering if this process is in anyway relevant to the development of engrafted cord cells. My wife and I consider you and “Harvey” to be courageous pioneers and we gratefully hang on your every word.

]]> By: Michael http://www.journal.clltopics.org/2008/05/08/going-no-where-fast/#comment-735 Michael Sun, 11 May 2008 08:11:04 +0000 http://www.journal.clltopics.org/2008/05/08/going-no-where-fast/#comment-735 Here's hoping, and praying, that the IVIG therapy will help. Here’s hoping, and praying, that the IVIG therapy will help.

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