Comments on: We Have a Suspect in Custody http://www.journal.clltopics.org/2008/05/02/we-have-a-suspect-in-custody/ The Story of an Elective Cord Blood Stem Cell Transplant Wed, 08 Feb 2012 20:13:17 +0000 http://wordpress.org/?v=2.3.3 By: Marilyn http://www.journal.clltopics.org/2008/05/02/we-have-a-suspect-in-custody/#comment-640 Marilyn Mon, 05 May 2008 00:51:34 +0000 http://www.journal.clltopics.org/2008/05/02/we-have-a-suspect-in-custody/#comment-640 I was really getting worried; and now we are hoping the meds work well. John took valganciclovir for several months during and after the CFAR, and had no problems with it. We hope that Harvey won't have any side effects from the ganciclovir----we could all go crazy from worry, just reading the possible side effects of all the drugs. (Always the worst-case scenario.) Maybe this will be the last bump in the road---we'll pray for that. Marilyn & John I was really getting worried; and now we are hoping the meds work well. John took valganciclovir for several months during and after the CFAR, and had no problems with it. We hope that Harvey won’t have any side effects from the ganciclovir—-we could all go crazy from worry, just reading the possible side effects of all the drugs. (Always the worst-case scenario.) Maybe this will be the last bump in the road—we’ll pray for that.

Marilyn & John

]]> By: Deb Light http://www.journal.clltopics.org/2008/05/02/we-have-a-suspect-in-custody/#comment-633 Deb Light Sun, 04 May 2008 03:23:47 +0000 http://www.journal.clltopics.org/2008/05/02/we-have-a-suspect-in-custody/#comment-633 Just wanted to thank you for doing this blog on Harvey so we can all keep up on him.I am praying for you both.So glad things are looking up now! God Bless, Deb www.cllcfriends.com Just wanted to thank you for doing this blog on Harvey so we can all keep up on him.I am praying for you both.So glad things are looking up now!

God Bless,
Deb
http://www.cllcfriends.com

]]> By: Jenny Lou Park http://www.journal.clltopics.org/2008/05/02/we-have-a-suspect-in-custody/#comment-632 Jenny Lou Park Sat, 03 May 2008 20:13:09 +0000 http://www.journal.clltopics.org/2008/05/02/we-have-a-suspect-in-custody/#comment-632 Heavy sigh of relief from Texas. CMV is a nasty thing. Thank you for all your posts during this hard time. A story on a Transplant Caregiver? Makes me tired just thinking about it. Hang in there, both of you. (or should I say all 3 of you?) Heavy sigh of relief from Texas. CMV is a nasty thing. Thank you for all your posts during this hard time. A story on a Transplant Caregiver? Makes me tired just thinking about it. Hang in there, both of you. (or should I say all 3 of you?)

]]> By: Jerry and Gretchen http://www.journal.clltopics.org/2008/05/02/we-have-a-suspect-in-custody/#comment-629 Jerry and Gretchen Sat, 03 May 2008 17:06:24 +0000 http://www.journal.clltopics.org/2008/05/02/we-have-a-suspect-in-custody/#comment-629 We were so glad to get the update and hear that Harvey is doing better. Thanks again for sharing with all of us. Thinking of you. We were so glad to get the update and hear that Harvey is doing better. Thanks again for sharing with all of us. Thinking of you.

]]> By: Frances http://www.journal.clltopics.org/2008/05/02/we-have-a-suspect-in-custody/#comment-627 Frances Sat, 03 May 2008 15:45:45 +0000 http://www.journal.clltopics.org/2008/05/02/we-have-a-suspect-in-custody/#comment-627 So glad to hear that the culprit has been identified and the treatment is doing its job. Wishing Harvey continued improvement. We all appreciate your help in guiding us through this maze with your knowledge and wisdom. So glad to hear that the culprit has been identified and the treatment is doing its job. Wishing Harvey continued improvement. We all appreciate your help in guiding us through this maze with your knowledge and wisdom.

]]> By: dmackinnon http://www.journal.clltopics.org/2008/05/02/we-have-a-suspect-in-custody/#comment-626 dmackinnon Sat, 03 May 2008 13:41:24 +0000 http://www.journal.clltopics.org/2008/05/02/we-have-a-suspect-in-custody/#comment-626 Chaya: Good news, so to speak. I assume you have experienced some psychic relief since the CMV was identified. I think your updates are most helpful to the CLL community and I hope that the process of writing down what is going on in this medical journey is therapeutic for you as well. Here's to a smoother recovery from here on out. Diane MacKinnon Chaya:
Good news, so to speak. I assume you have experienced some psychic relief since the CMV was identified. I think your updates are most helpful to the CLL community and I hope that the process of writing down what is going on in this medical journey is therapeutic for you as well.
Here’s to a smoother recovery from here on out.
Diane MacKinnon

]]> By: tpo4444 http://www.journal.clltopics.org/2008/05/02/we-have-a-suspect-in-custody/#comment-625 tpo4444 Sat, 03 May 2008 12:30:42 +0000 http://www.journal.clltopics.org/2008/05/02/we-have-a-suspect-in-custody/#comment-625 Is it to early to go "Whew"? You had me worried there. Thanks for the update and the info! We're pulling for you (BOTH) Is it to early to go “Whew”?
You had me worried there.
Thanks for the update and the info!
We’re pulling for you (BOTH)

]]> By: SAL G http://www.journal.clltopics.org/2008/05/02/we-have-a-suspect-in-custody/#comment-621 SAL G Sat, 03 May 2008 09:49:32 +0000 http://www.journal.clltopics.org/2008/05/02/we-have-a-suspect-in-custody/#comment-621 MY PRAYERS ARE WITH YOU DAILY .COURAGE MY PRAYERS ARE WITH YOU DAILY .COURAGE

]]> By: David & Marilyn http://www.journal.clltopics.org/2008/05/02/we-have-a-suspect-in-custody/#comment-619 David & Marilyn Sat, 03 May 2008 08:55:34 +0000 http://www.journal.clltopics.org/2008/05/02/we-have-a-suspect-in-custody/#comment-619 Good to hear they've identified a culprit and that Harvey is doing better. Hope you both can enjoy a less eventful recovery from now on! Good to hear they’ve identified a culprit and that Harvey is doing better. Hope you both can enjoy a less eventful recovery from now on!

]]> By: brian http://www.journal.clltopics.org/2008/05/02/we-have-a-suspect-in-custody/#comment-609 brian Sat, 03 May 2008 02:33:21 +0000 http://www.journal.clltopics.org/2008/05/02/we-have-a-suspect-in-custody/#comment-609 Those herpes viruses are so nasty and so sly. Thank goodness it appears to be something treatable. I and so many others are so happy to hear about Harvey turning the corner. Many of us has been checking the site several times a day for any good news. Be well and stay strong Brian A doc with CLL and his MUD transplant scheduled for July 1 at City of Hope. Just started my blog but most of the posting won't be until late June. I am following in Dr Hamblin's choice of media (eblog) and Harvey's so generous and gritty public sharing http://bkoffman.blogspot.com/ Those herpes viruses are so nasty and so sly. Thank goodness it appears to be something treatable. I and so many others are so happy to hear about Harvey turning the corner. Many of us has been checking the site several times a day for any good news.
Be well and stay strong
Brian
A doc with CLL and his MUD transplant scheduled for July 1 at City of Hope. Just started my blog but most of the posting won’t be until late June. I am following in Dr Hamblin’s choice of media (eblog) and Harvey’s so generous and gritty public sharing

http://bkoffman.blogspot.com/

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