Comments on: Two Steps Forward, One Step Back http://www.journal.clltopics.org/2008/04/18/two-steps-forward-one-step-back/ The Story of an Elective Cord Blood Stem Cell Transplant Wed, 08 Feb 2012 20:19:38 +0000 http://wordpress.org/?v=2.3.3 By: Ramez Kutrieh http://www.journal.clltopics.org/2008/04/18/two-steps-forward-one-step-back/#comment-427 Ramez Kutrieh Wed, 23 Apr 2008 22:45:50 +0000 http://www.journal.clltopics.org/2008/04/18/two-steps-forward-one-step-back/#comment-427 My wife and I are wishing Harvey and you the best outcome. We check the daily. No news is good news, we pray. Ramez and Marcia My wife and I are wishing Harvey and you the best outcome. We check the daily. No news is good news, we pray.

Ramez and Marcia

]]> By: dmackinnon http://www.journal.clltopics.org/2008/04/18/two-steps-forward-one-step-back/#comment-426 dmackinnon Wed, 23 Apr 2008 13:55:54 +0000 http://www.journal.clltopics.org/2008/04/18/two-steps-forward-one-step-back/#comment-426 Chaya: I am holding my virtual breath until this fever siege is over. I can remember lying in the hospital with 200 neutrophils and a headache from fever. The doctor said "well, 2 days on IV antibiotic and some increase in neutrophils, you should be OK". But there was a small voice in my head saying "Now what if the neutrophils do not increase?" Obviously things did work out for me but it is very threatening, common as it may be. Hugs, Diane Chaya:
I am holding my virtual breath until this fever siege is over. I can remember lying in the hospital with 200 neutrophils and a headache from fever. The doctor said “well, 2 days on IV antibiotic and some increase in neutrophils, you should be OK”. But there was a small voice in my head saying “Now what if the neutrophils do not increase?” Obviously things did work out for me but it is very threatening, common as it may be.

Hugs,
Diane

]]> By: chris http://www.journal.clltopics.org/2008/04/18/two-steps-forward-one-step-back/#comment-425 chris Tue, 22 Apr 2008 23:33:01 +0000 http://www.journal.clltopics.org/2008/04/18/two-steps-forward-one-step-back/#comment-425 You continue to be in our thoughts and prayers. Our entire family is so anxious to hear how PC is doing. We look forward to an update. In the meantime, good thooughts are being sent your way. You continue to be in our thoughts and prayers. Our entire family is so anxious to hear how PC is doing. We look forward to an update. In the meantime, good thooughts are being sent your way.

]]> By: Marilyn http://www.journal.clltopics.org/2008/04/18/two-steps-forward-one-step-back/#comment-424 Marilyn Tue, 22 Apr 2008 22:38:19 +0000 http://www.journal.clltopics.org/2008/04/18/two-steps-forward-one-step-back/#comment-424 I hope that no news is good news here----we were out of town; just read this post yesterday and thought I'd see a new one by now. When we don't get a new update for several days, I get worried about Harvey! Hopefully this means you're busy getting back to the apartment. Anyway, my best to you both. I hope that no news is good news here—-we were out of town; just read this post yesterday and thought I’d see a new one by now. When we don’t get a new update for several days, I get worried about Harvey! Hopefully this means you’re busy getting back to the apartment. Anyway, my best to you both.

]]> By: Maddog23 http://www.journal.clltopics.org/2008/04/18/two-steps-forward-one-step-back/#comment-423 Maddog23 Mon, 21 Apr 2008 18:54:48 +0000 http://www.journal.clltopics.org/2008/04/18/two-steps-forward-one-step-back/#comment-423 Chaya: I am very sorry to hear about "Harvey". I was away for the weekend so I have not had a chance to check in on "Harvey". My best wishes and thoughts are with you and "Harvey" Chaya: I am very sorry to hear about “Harvey”. I was away for the weekend so I have not had a chance to check in on “Harvey”. My best wishes and thoughts are with you and “Harvey”

]]> By: Kathryn http://www.journal.clltopics.org/2008/04/18/two-steps-forward-one-step-back/#comment-422 Kathryn Mon, 21 Apr 2008 16:36:34 +0000 http://www.journal.clltopics.org/2008/04/18/two-steps-forward-one-step-back/#comment-422 Chaya, I'm sure you know that there is an enormous flow of positive energy waves coming from all directions which is surrounding both you and "Harvey". May they help sustain and strengthen you both and guide him back to good health. Thank you so very much for sharing your experience and knowledge with all of us. Namaste, Kathryn Chaya,
I’m sure you know that there is an enormous flow of positive energy waves coming from all directions which is surrounding both you and “Harvey”. May they help sustain and strengthen you both and guide him back to good health. Thank you so very much for sharing your experience and knowledge with all of us.
Namaste, Kathryn

]]> By: Lisa http://www.journal.clltopics.org/2008/04/18/two-steps-forward-one-step-back/#comment-419 Lisa Mon, 21 Apr 2008 00:00:13 +0000 http://www.journal.clltopics.org/2008/04/18/two-steps-forward-one-step-back/#comment-419 Chaya, The road to true love, and renewed health, is never smooth. Harvey already has the first and with a little more luck, he will soon have the second. Fingers crossed. Lisa Chaya, The road to true love, and renewed health, is never smooth. Harvey already has the first and with a little more luck, he will soon have the second. Fingers crossed. Lisa

]]> By: diane http://www.journal.clltopics.org/2008/04/18/two-steps-forward-one-step-back/#comment-418 diane Sun, 20 Apr 2008 16:09:03 +0000 http://www.journal.clltopics.org/2008/04/18/two-steps-forward-one-step-back/#comment-418 Thank you so much for CLL Topics We are facing an allogenic transplant as soon as my husband's CLL/Lymphoma is under control. He has been through FCR, R-Chop and now R-ESHAP, it has been discouraging but we are encouraged through other's success stories. God bless you all and thank you Thank you so much for CLL Topics
We are facing an allogenic transplant as soon as my husband’s CLL/Lymphoma is under control. He has been through FCR, R-Chop and now R-ESHAP, it has been discouraging but we are encouraged through other’s success stories.
God bless you all and thank you

]]> By: Norm and Irene http://www.journal.clltopics.org/2008/04/18/two-steps-forward-one-step-back/#comment-417 Norm and Irene Sun, 20 Apr 2008 15:40:58 +0000 http://www.journal.clltopics.org/2008/04/18/two-steps-forward-one-step-back/#comment-417 Chaya thank you again with your selfless sharing of knowledge and experiences for the CLL community! Chaya in one of your post you explained about using the Heparin to flush Harvey’s catheter. I’ve heard there have been some problems with Heparin from China being made for Baxtar and has been showing up in the US medical system. Are you and the hospital been aware this issue? http://www.medscape.com/viewarticle/569325 Please tell Harvey he and you are in our prayers! Love Norm and Irene Chaya thank you again with your selfless sharing of knowledge and experiences for the CLL community!

Chaya in one of your post you explained about using the Heparin to flush Harvey’s catheter. I’ve heard there have been some problems with Heparin from China being made for Baxtar and has been showing up in the US medical system. Are you and the hospital been aware this issue? http://www.medscape.com/viewarticle/569325

Please tell Harvey he and you are in our prayers!

Love

Norm and Irene

]]> By: Elaine http://www.journal.clltopics.org/2008/04/18/two-steps-forward-one-step-back/#comment-402 Elaine Sun, 20 Apr 2008 02:42:26 +0000 http://www.journal.clltopics.org/2008/04/18/two-steps-forward-one-step-back/#comment-402 I am glad to hear that Harvey is being watched so closely. This is a good thing and will lead to the best possible outcome. My love to all. I am glad to hear that Harvey is being watched so closely. This is a good thing and will lead to the best possible outcome. My love to all.

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