Comments on: Better Living Through Chemicals http://www.journal.clltopics.org/2008/04/12/better-living-through-chemicals/ The Story of an Elective Cord Blood Stem Cell Transplant Wed, 08 Feb 2012 20:21:31 +0000 http://wordpress.org/?v=2.3.3 By: Beth and John http://www.journal.clltopics.org/2008/04/12/better-living-through-chemicals/#comment-351 Beth and John Sun, 13 Apr 2008 21:18:01 +0000 http://www.journal.clltopics.org/2008/04/12/better-living-through-chemicals/#comment-351 We agree with Nancy. This is an amazing story, because it was lived and told by two amazing people. Live on, both of you, Beth and John We agree with Nancy. This is an amazing story, because it was lived and told by two amazing people. Live on, both of you, Beth and John

]]> By: Wayne Wells http://www.journal.clltopics.org/2008/04/12/better-living-through-chemicals/#comment-339 Wayne Wells Sun, 13 Apr 2008 19:14:24 +0000 http://www.journal.clltopics.org/2008/04/12/better-living-through-chemicals/#comment-339 Chaya - you rightly focus on Harvey's need for the nutrients to help him properly recover. With the dizzying array of drugs let alone vitamins and minerals involved do you or the doctors need to test for negative synergies? It blows me away that you did not get a cautionary warning about Ativan withdraw from the hospital staff. Be well Chaya - you rightly focus on Harvey’s need for the nutrients to help him properly recover. With the dizzying array of drugs let alone vitamins and minerals involved do you or the doctors need to test for negative synergies?

It blows me away that you did not get a cautionary warning about Ativan withdraw from the hospital staff.

Be well

]]> By: Ramez Kutrieh http://www.journal.clltopics.org/2008/04/12/better-living-through-chemicals/#comment-336 Ramez Kutrieh Sun, 13 Apr 2008 11:54:37 +0000 http://www.journal.clltopics.org/2008/04/12/better-living-through-chemicals/#comment-336 You have our prayers for a successful conclucion to your journey. You have our prayers for a successful conclucion to your journey.

]]> By: John http://www.journal.clltopics.org/2008/04/12/better-living-through-chemicals/#comment-331 John Sun, 13 Apr 2008 03:42:17 +0000 http://www.journal.clltopics.org/2008/04/12/better-living-through-chemicals/#comment-331 Hi, So happy things are going so well! Nancy Simpson's comment captures my thoughts very nicely. What an unbelieveably great contribution CLL Topics makes to those of us with CLL. Hi,
So happy things are going so well!
Nancy Simpson’s comment captures my thoughts very nicely. What an unbelieveably great contribution CLL Topics makes to those of us with CLL.

]]> By: chaya http://www.journal.clltopics.org/2008/04/12/better-living-through-chemicals/#comment-329 chaya Sat, 12 Apr 2008 22:38:55 +0000 http://www.journal.clltopics.org/2008/04/12/better-living-through-chemicals/#comment-329 Michael: You are right, a single donor (volunteer, as opposed to paid donor) sourced blood is better than that obtained from a cluster of donors. However, this may not always be an option, especially during times of shortages of blood products. Chaya Michael:

You are right, a single donor (volunteer, as opposed to paid donor) sourced blood is better than that obtained from a cluster of donors. However, this may not always be an option, especially during times of shortages of blood products.

Chaya

]]> By: Michael Dereskewicz http://www.journal.clltopics.org/2008/04/12/better-living-through-chemicals/#comment-327 Michael Dereskewicz Sat, 12 Apr 2008 21:32:19 +0000 http://www.journal.clltopics.org/2008/04/12/better-living-through-chemicals/#comment-327 I also made sure both red blood and platelet transfusions were from a single (as opposed to multiple)donor. I also made sure both red blood and platelet transfusions were from a single (as opposed to multiple)donor.

]]> By: stargazerlily17 http://www.journal.clltopics.org/2008/04/12/better-living-through-chemicals/#comment-326 stargazerlily17 Sat, 12 Apr 2008 21:23:55 +0000 http://www.journal.clltopics.org/2008/04/12/better-living-through-chemicals/#comment-326 Dear Chaya and PC, thank you so...much for continuing to share your personal experiences with us cll'ers and caregivers. You teach us so much about this disease and treatments through sharing your journey with us. You encourage us to ask questions of our physicians but it seems when my husband goes into the office with his questions written so he doesnt forget, the doctors next question is "so Tom, do you feel depressed and anxious" LOL!! Why is that...when a patient wants to be an active participant in his/her care and treatment etc. they are labeled depressed or anxious?? Whatever the label we will continue to ask questions, after all we DO have a vested interest in Tom's care! Eileen An Irish Prayer May God give you... For every storm, a rainbow, For every tear, a smile, For every care, a promise, And a blessing in each trial. For every problem life sends, A faithful friend to share, For every sigh, a sweet song, And an answer for each prayer. Dear Chaya and PC, thank you so…much for continuing to share your personal experiences with us cll’ers and caregivers. You teach us so much about this disease and treatments through sharing your journey with us. You encourage us to ask questions of our physicians but it seems when my husband goes into the office with his questions written so he doesnt forget, the doctors next question is “so Tom, do you feel depressed and anxious” LOL!! Why is that…when a patient wants to be an active participant in his/her care and treatment etc. they are labeled depressed or anxious?? Whatever the label we will continue to ask questions, after all we DO have a vested interest in Tom’s care! Eileen
An Irish Prayer
May God give you…
For every storm, a rainbow,
For every tear, a smile,
For every care, a promise,
And a blessing in each trial.
For every problem life sends,
A faithful friend to share,
For every sigh, a sweet song,
And an answer for each prayer.

]]> By: Nancy Simpson http://www.journal.clltopics.org/2008/04/12/better-living-through-chemicals/#comment-325 Nancy Simpson Sat, 12 Apr 2008 21:20:53 +0000 http://www.journal.clltopics.org/2008/04/12/better-living-through-chemicals/#comment-325 Ever wonder what the greatest book ever written was. Homer's The Odyssey, Milton's Paradise Lost? Don Quixote, War and Peace? To many of us, your CLLtopics and Harvey's Journal are among the greatest "books" ever written. For every person thinking about, or going through a transplant, your journal is winning the lottery kind of stuff. For all of us, CLLtopics has been our Bible. I can't tell you how much we love you and PC and how we are with you in those rooms and in the hard places. How happy we are when things go right. You have a huge CLL family that loves you so much. You have touched so many lives, your karma must be astronomical! I love you! xoxo Nancy Ever wonder what the greatest book ever written was. Homer’s The Odyssey, Milton’s Paradise Lost? Don Quixote, War and Peace? To many of us, your CLLtopics and Harvey’s Journal are among the greatest “books” ever written. For every person thinking about, or going through a transplant, your journal is winning the lottery kind of stuff. For all of us, CLLtopics has been our Bible. I can’t tell you how much we love you and PC and how we are with you in those rooms and in the hard places. How happy we are when things go right. You have a huge CLL family that loves you so much. You have touched so many lives, your karma must be astronomical! I love you! xoxo Nancy

]]> By: Trekker 03 http://www.journal.clltopics.org/2008/04/12/better-living-through-chemicals/#comment-321 Trekker 03 Sat, 12 Apr 2008 20:02:34 +0000 http://www.journal.clltopics.org/2008/04/12/better-living-through-chemicals/#comment-321 As you know there is no free lunch. As Harvey begins to feel better and better and do more and more make sure that he stretches well before exercise and goes slowly with resistance exercises as chronic use of floxins such as levaquin have been associated with tendon ruptures. As you know there is no free lunch. As Harvey begins to feel better and better and do more and more make sure that he stretches well before exercise and goes slowly with resistance exercises as chronic use of floxins such as levaquin have been associated with tendon ruptures.

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