Comments on: FUO http://www.journal.clltopics.org/2008/04/05/fuo/ The Story of an Elective Cord Blood Stem Cell Transplant Wed, 08 Feb 2012 04:24:37 +0000 http://wordpress.org/?v=2.3.3 By: Sandy in Fargo http://www.journal.clltopics.org/2008/04/05/fuo/#comment-282 Sandy in Fargo Mon, 07 Apr 2008 20:06:40 +0000 http://www.journal.clltopics.org/2008/04/05/fuo/#comment-282 Hi, Chaya -- we haven't been in touch in quite a while, but Lincoln and I wanted to say "hello" and we're following events for you and "Harvey." Best wishes to you both and good healing to "Harvey." Steady as she goes and boring, may it be ever thus. Good things to help you both endure. Hi, Chaya — we haven’t been in touch in quite a while, but Lincoln and I wanted to say “hello” and we’re following events for you and “Harvey.” Best wishes to you both and good healing to “Harvey.” Steady as she goes and boring, may it be ever thus. Good things to help you both endure.

]]> By: merle http://www.journal.clltopics.org/2008/04/05/fuo/#comment-280 merle Mon, 07 Apr 2008 12:42:09 +0000 http://www.journal.clltopics.org/2008/04/05/fuo/#comment-280 chaya...i was in the hospital three times for FUO, twice in seattle after the tp, and once here at home in philadelphia. my temp is usually 74 something but they respond only to that magic 100.5. cultures grew nothing and they were monitoring my CMV but had no real reason for the spike. i think i remember IvIG infusions too... chaya…i was in the hospital three times for FUO, twice in seattle after the tp, and once here at home in philadelphia. my temp is usually 74 something but they respond only to that magic 100.5. cultures grew nothing and they were monitoring my CMV but had no real reason for the spike. i think i remember IvIG infusions too…

]]> By: Mark http://www.journal.clltopics.org/2008/04/05/fuo/#comment-279 Mark Mon, 07 Apr 2008 04:56:02 +0000 http://www.journal.clltopics.org/2008/04/05/fuo/#comment-279 I used to have a rock steady temp of 98.6 and if I was running a fever I could tell by the way my legs felt (confirmed of course by a thermometer). After my "pre-diagnosis event" I started running a very unsteady 97-98. And I can no longer tell when I have a fever with out actually taking it. Could a rise in temperature signify the body returning to a more "normal" state? I used to have a rock steady temp of 98.6 and if I was running a fever I could tell by the way my legs felt (confirmed of course by a thermometer). After my “pre-diagnosis event” I started running a very unsteady 97-98. And I can no longer tell when I have a fever with out actually taking it.

Could a rise in temperature signify the body returning to a more “normal” state?

]]> By: WAYNE WELLS http://www.journal.clltopics.org/2008/04/05/fuo/#comment-277 WAYNE WELLS Sun, 06 Apr 2008 15:31:15 +0000 http://www.journal.clltopics.org/2008/04/05/fuo/#comment-277 Is it possible to consider a fever that is CONTROLLED a bodily defense function in Harvey's situation? Has the procedures and fever affected Harv's sense of taste? How did "Serena" ever get her name?? Keep crackin' that whip! Wayne and Fay Is it possible to consider a fever that is CONTROLLED a bodily defense function in Harvey’s situation?
Has the procedures and fever affected Harv’s sense of taste?

How did “Serena” ever get her name?? Keep crackin’ that whip!
Wayne and Fay

]]> By: Jenny Lou Park http://www.journal.clltopics.org/2008/04/05/fuo/#comment-276 Jenny Lou Park Sun, 06 Apr 2008 12:37:40 +0000 http://www.journal.clltopics.org/2008/04/05/fuo/#comment-276 Quiet and boring is a good thing. I hope that Harvey's temp is back in normal range today. Quiet and boring is a good thing. I hope that Harvey’s temp is back in normal range today.

]]> By: brian http://www.journal.clltopics.org/2008/04/05/fuo/#comment-275 brian Sun, 06 Apr 2008 03:57:37 +0000 http://www.journal.clltopics.org/2008/04/05/fuo/#comment-275 Chaya, There is some variability in the definition of FUO in neutropenic patients. The criteria are less rigid in some institutes. The rise in neutrophils so soon is certainly welcome news Your advise about fitness is well heeded. I myself am trying to bulk up (not easy when you are vegan), but with a personal trainer and home weights I have gone from 155 to 170 pounds in 3 months. I also use a Nordic track which is easier on my arthritic knees. From accounts I have read of the harsher mylo-ablative transplants, huge weight losses and deconditioning are common. It is great that Harvey is being spared much of that particular trial. Thanks for your thoughtful notes. Waiting is the hardest part, and your blog is so helpful. Brian Chaya,
There is some variability in the definition of FUO in neutropenic patients. The criteria are less rigid in some institutes. The rise in neutrophils so soon is certainly welcome news
Your advise about fitness is well heeded. I myself am trying to bulk up (not easy when you are vegan), but with a personal trainer and home weights I have gone from 155 to 170 pounds in 3 months. I also use a Nordic track which is easier on my arthritic knees. From accounts I have read of the harsher mylo-ablative transplants, huge weight losses and deconditioning are common. It is great that Harvey is being spared much of that particular trial.
Thanks for your thoughtful notes. Waiting is the hardest part, and your blog is so helpful.
Brian

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