Comments on: A Different Kind of Watch & Wait http://www.journal.clltopics.org/2008/04/02/a-different-kind-of-watch-wait/ The Story of an Elective Cord Blood Stem Cell Transplant Wed, 08 Feb 2012 20:16:38 +0000 http://wordpress.org/?v=2.3.3 By: Beth and John http://www.journal.clltopics.org/2008/04/02/a-different-kind-of-watch-wait/#comment-348 Beth and John Sun, 13 Apr 2008 21:11:08 +0000 http://www.journal.clltopics.org/2008/04/02/a-different-kind-of-watch-wait/#comment-348 We are in awe. Go Harvey and Chaya, Beth and John We are in awe. Go Harvey and Chaya,

Beth and John

]]> By: WAYNE WELLS http://www.journal.clltopics.org/2008/04/02/a-different-kind-of-watch-wait/#comment-266 WAYNE WELLS Fri, 04 Apr 2008 23:09:15 +0000 http://www.journal.clltopics.org/2008/04/02/a-different-kind-of-watch-wait/#comment-266 May the FORCE be with you!!! You are on your Way. Wayne and Fay sending our best vibes. May the FORCE be with you!!!
You are on your Way.
Wayne and Fay sending our best vibes.

]]> By: judy http://www.journal.clltopics.org/2008/04/02/a-different-kind-of-watch-wait/#comment-258 judy Fri, 04 Apr 2008 17:29:54 +0000 http://www.journal.clltopics.org/2008/04/02/a-different-kind-of-watch-wait/#comment-258 I am so happy that everything is going so well. I am praying for you both! I am so happy that everything is going so well. I am praying for you both!

]]> By: Grant http://www.journal.clltopics.org/2008/04/02/a-different-kind-of-watch-wait/#comment-257 Grant Fri, 04 Apr 2008 16:30:16 +0000 http://www.journal.clltopics.org/2008/04/02/a-different-kind-of-watch-wait/#comment-257 HAR-VEE! HAR-VEE! HAR-VEE! HAR-VEE! HAR-VEE! HAR-VEE!

]]> By: Bruce http://www.journal.clltopics.org/2008/04/02/a-different-kind-of-watch-wait/#comment-256 Bruce Fri, 04 Apr 2008 02:38:36 +0000 http://www.journal.clltopics.org/2008/04/02/a-different-kind-of-watch-wait/#comment-256 Looking at the numbers I think they are encouraging. A bump to 0.4 WBC seems very promising. In my wife's case just prior to engraftment she had an overall improvement in her general feeling of well-being. Engraftment was also preceded by an increase in ability to eat and desire for food. She actually felt better before it was revealed by the numbers. Question? Do you not get two blood counts per day? At the Mayo we always had a morning and evening CBC. I believe the reason for two was they felt they could spot something quicker and begin treatment. We are -9 days from her 2 year anniversary for her mini-allo with absolutely no sign of CLL (and none expected) She has minor Stage 1, low Stage 2 GvHD. All related to skin rash. CLL can be beat! Looking at the numbers I think they are encouraging. A bump to 0.4 WBC seems very promising. In my wife’s case just prior to engraftment she had an overall improvement in her general feeling of well-being. Engraftment was also preceded by an increase in ability to eat and desire for food. She actually felt better before it was revealed by the numbers.

Question? Do you not get two blood counts per day? At the Mayo we always had a morning and evening CBC. I believe the reason for two was they felt they could spot something quicker and begin treatment.

We are -9 days from her 2 year anniversary for her mini-allo with absolutely no sign of CLL (and none expected) She has minor Stage 1, low Stage 2 GvHD. All related to skin rash. CLL can be beat!

]]> By: becky http://www.journal.clltopics.org/2008/04/02/a-different-kind-of-watch-wait/#comment-255 becky Thu, 03 Apr 2008 21:10:50 +0000 http://www.journal.clltopics.org/2008/04/02/a-different-kind-of-watch-wait/#comment-255 Hi.....I've just recently discovered " Harvey's Journal", my husband was diagnosed with CLL at 60, within the 6 months , he was on a 6 months round of fludarabine, then within two years another 6 months of rituxin- fludarabine . Less than two years later - early Feb.07 he developed hypercalcemia suddenly - unexpectedly ( bloodwork 6 weeks earlier no indication ), he then had 6 months of R-Chop with a 6 week break and into hospital for bonemarrow stemcell transplant . That of coarse involved another week of heavy duty conditioning chemo. I pretty much understand what you folks are going through . It sounds like Harvey is doing tremdously well (all considered ) from what is written on these pages . His ability to eat seems to have returned pretty quick and signs of wbc are right on. I truely wish you folks the very best , you are in my prayers . (My husband lost all his hair right up to his eyelashes , but even with the nastiest stuff they can dish out not everyone does.) wishing much sunshine becky Hi…..I’ve just recently discovered ” Harvey’s Journal”, my husband was diagnosed with CLL at 60, within the 6 months , he was on a 6 months round of fludarabine, then within two years another 6 months of rituxin- fludarabine . Less than two years later - early Feb.07 he developed hypercalcemia suddenly - unexpectedly ( bloodwork 6 weeks earlier no indication ), he then had 6 months of R-Chop with a 6 week break and into hospital for bonemarrow stemcell transplant . That of coarse involved another week of heavy duty conditioning chemo. I pretty much understand what you folks are going through . It sounds like Harvey is doing tremdously well (all considered ) from what is written on these pages . His ability to eat seems to have returned pretty quick and signs of wbc are right on. I truely wish you folks the very best , you are in my prayers . (My husband lost all his hair right up to his eyelashes , but even with the nastiest stuff they can dish out not everyone does.) wishing much sunshine becky

]]> By: Dave http://www.journal.clltopics.org/2008/04/02/a-different-kind-of-watch-wait/#comment-254 Dave Thu, 03 Apr 2008 19:34:46 +0000 http://www.journal.clltopics.org/2008/04/02/a-different-kind-of-watch-wait/#comment-254 Hang in there Harvey, I;am sending my prayers and best wishes to you and Chaya. Hang in there Harvey, I;am sending my prayers and best wishes to you and Chaya.

]]> By: las3392 http://www.journal.clltopics.org/2008/04/02/a-different-kind-of-watch-wait/#comment-253 las3392 Thu, 03 Apr 2008 18:20:17 +0000 http://www.journal.clltopics.org/2008/04/02/a-different-kind-of-watch-wait/#comment-253 I am rooting for a continued positive course. Lloyd Shane I am rooting for a continued positive course.

Lloyd Shane

]]> By: Chaya http://www.journal.clltopics.org/2008/04/02/a-different-kind-of-watch-wait/#comment-252 Chaya Thu, 03 Apr 2008 15:32:22 +0000 http://www.journal.clltopics.org/2008/04/02/a-different-kind-of-watch-wait/#comment-252 Captain Kirk? I would say more like Captain Picard, after he sheds the little hair he has on his head. But I have to admit so far he has shown no signs of shedding any of his hair. We have a bet going here. Harvey sports an ever so debonair mustache and goatee. He is determined to keep it flourishing all the way through, chemo be damned. I am betting he will have to say goodbye to it, even if it is only for a short while. We shall see who wins this one. Captain Kirk? I would say more like Captain Picard, after he sheds the little hair he has on his head. But I have to admit so far he has shown no signs of shedding any of his hair.

We have a bet going here. Harvey sports an ever so debonair mustache and goatee. He is determined to keep it flourishing all the way through, chemo be damned. I am betting he will have to say goodbye to it, even if it is only for a short while. We shall see who wins this one.

]]> By: Howard http://www.journal.clltopics.org/2008/04/02/a-different-kind-of-watch-wait/#comment-251 Howard Thu, 03 Apr 2008 15:12:24 +0000 http://www.journal.clltopics.org/2008/04/02/a-different-kind-of-watch-wait/#comment-251 Following every journal enrtry. Good news so far. Your like captian Kirk leading us were we might have to go but have never been before. Thank you. Many blessings. Howard Following every journal enrtry. Good news so far. Your like captian Kirk leading us were we might have to go but have never been before. Thank you. Many blessings. Howard

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