Comments on: This Too Shall Pass http://www.journal.clltopics.org/2008/03/24/this-too-shall-pass/ The Story of an Elective Cord Blood Stem Cell Transplant Wed, 08 Feb 2012 05:07:42 +0000 http://wordpress.org/?v=2.3.3 By: Bruce http://www.journal.clltopics.org/2008/03/24/this-too-shall-pass/#comment-209 Bruce Sat, 29 Mar 2008 23:48:26 +0000 http://www.journal.clltopics.org/2008/03/24/this-too-shall-pass/#comment-209 Chaya, I faced the same conditions on several occasions at the Mayo with regard to cleanliness. In both cases I spoke to a supervisor. In my case I was thanked profusely and my comments made a difference. Lives are at stake here and speaking up is difficult but necessary. Chaya,

I faced the same conditions on several occasions at the Mayo with regard to cleanliness. In both cases I spoke to a supervisor. In my case I was thanked profusely and my comments made a difference. Lives are at stake here and speaking up is difficult but necessary.

]]> By: Barb & Blair http://www.journal.clltopics.org/2008/03/24/this-too-shall-pass/#comment-172 Barb & Blair Thu, 27 Mar 2008 01:52:42 +0000 http://www.journal.clltopics.org/2008/03/24/this-too-shall-pass/#comment-172 Dear Harvey & Chaya: You have been a non-stop presence in our minds. I can relate to feeling conflicted about about the dirty doc. Some of them are like angels...and some more like the sham-artist "Wizard" behind the curtain. Who needs additional pitfalls? I am so impressed with Harvey's determination on the treadmill. As as personal trainer, its inspiring to hear such committemnt - I hear enough excuses from lazy clients. Stay strong! Love Barb & Blair Dear Harvey & Chaya:
You have been a non-stop presence in our minds. I can relate to feeling conflicted about about the dirty doc. Some of them are like angels…and some more like the sham-artist “Wizard” behind the curtain. Who needs additional pitfalls? I am so impressed with Harvey’s determination on the treadmill. As as personal trainer, its inspiring to hear such committemnt - I hear enough excuses from lazy clients. Stay strong!
Love Barb & Blair

]]> By: Betty http://www.journal.clltopics.org/2008/03/24/this-too-shall-pass/#comment-171 Betty Wed, 26 Mar 2008 17:43:57 +0000 http://www.journal.clltopics.org/2008/03/24/this-too-shall-pass/#comment-171 Dear Chaya and Harvey, You two are models for not giving CLL an inch without a battle; exercise, diet, green tea, vitamin D---plus careful research as to the very best out there for treatment choices. And, perhaps, most important of all, the attitude of "never, never, never ever give up!" I am a senior watch and wait-er (6 yrs in Aug) and continue to be thankful for that. I find comfort and a world of information in CLL Topics; your very generous gift to all of us. It helps in dealing with the mind games CLL seems to like to play, knowing what can be done now to beat it back and what can be done should the need arise down the road. My healing thoughts and prayers continue to be with you as you move toward a full and complete cure. Dear Chaya and Harvey,
You two are models for not giving CLL an inch without a battle; exercise, diet, green tea, vitamin D—plus careful research as to the very best out there for treatment choices. And, perhaps, most important of all, the attitude of “never, never, never ever give up!”
I am a senior watch and wait-er (6 yrs in Aug) and continue to be thankful for that. I find comfort and a world of information in CLL Topics; your very generous gift to all of us. It helps in dealing with the mind games CLL seems to like to play, knowing what can be done now to beat it back and what can be done should the need arise down the road.
My healing thoughts and prayers continue to be with you as you move toward a full and complete cure.

]]> By: Debbie http://www.journal.clltopics.org/2008/03/24/this-too-shall-pass/#comment-170 Debbie Wed, 26 Mar 2008 14:33:24 +0000 http://www.journal.clltopics.org/2008/03/24/this-too-shall-pass/#comment-170 Today is the big day. You two are the trailblazers for the rest of us out here. We are all praying for you, and while we have never met, does not mean that we are not all conncected. I want so much for you a successful new life. You are not alone. All of us out here, all care about you both. Thank you for sharing your information because it is so important to the rest of us. Today is the big day. You two are the trailblazers for the rest of us out here. We are all praying for you, and while we have never met, does not mean that we are not all conncected. I want so much for you a successful new life. You are not alone. All of us out here, all care about you both. Thank you for sharing your information because it is so important to the rest of us.

]]> By: La Jauberte http://www.journal.clltopics.org/2008/03/24/this-too-shall-pass/#comment-169 La Jauberte Wed, 26 Mar 2008 11:32:19 +0000 http://www.journal.clltopics.org/2008/03/24/this-too-shall-pass/#comment-169 Well, today is the big day! I doubt if any one Cll patient has been as well-prepared for a SCT than you have, Harvey-emotionally, intellectually, and practically. And I am sure that there has never been a stronger and medically savvy Cll team than you and Chaya to face this life-altering procedure. And with all the energy and dedication that have brought you to this point, well, luck is definitely on your side. So Vera and I are expecting the best of all possible outcomes! You deserve the best. And the blow-by-blow detailed daily accounts of your treatment experience are priceless. It allows us to be with you, in an important way that is very uplifting. Chip & Vera Well, today is the big day! I doubt if any one Cll patient has been as well-prepared for a SCT than you have, Harvey-emotionally, intellectually, and practically. And I am sure that there has never been a stronger and medically savvy Cll team than you and Chaya to face this life-altering procedure. And with all the energy and dedication that have brought you to this point, well, luck is definitely on your side. So Vera and I are expecting the best of all possible outcomes! You deserve the best. And the blow-by-blow detailed daily accounts of your treatment experience are priceless. It allows us to be with you, in an important way that is very uplifting. Chip & Vera

]]> By: Paul http://www.journal.clltopics.org/2008/03/24/this-too-shall-pass/#comment-168 Paul Wed, 26 Mar 2008 01:39:50 +0000 http://www.journal.clltopics.org/2008/03/24/this-too-shall-pass/#comment-168 Hi Chaya and Harvey, let me had to the many thought, prayers, and good wishes. You guys have touched our lives in so many ways over the past years and your journey is also our journey. Many of us know that the journey Harvey is taking now is also one we will be on not long from now. God Bless us all, Paul Hi Chaya and Harvey, let me had to the many thought, prayers, and good wishes. You guys have touched our lives in so many ways over the past years and your journey is also our journey. Many of us know that the journey Harvey is taking now is also one we will be on not long from now. God Bless us all, Paul

]]> By: Urmila http://www.journal.clltopics.org/2008/03/24/this-too-shall-pass/#comment-167 Urmila Tue, 25 Mar 2008 23:55:48 +0000 http://www.journal.clltopics.org/2008/03/24/this-too-shall-pass/#comment-167 Hi Chaya: Good luck to Harvey with tomorrow's birthday!! On the doctor's dirty coat: When my niece was in the hospital getting chemo, my daughter, who was with her, actually told one of the residents who started coughing, that he should just stay out. He said they were allergies, but she was adamant and kept him out,I think.I say, NO ONE should feel hesitant when it comes to possible serious consequences. Good luck to Harvey and you and your family. Urmila Hi Chaya: Good luck to Harvey with tomorrow’s birthday!! On the doctor’s dirty coat: When my niece was in the hospital getting chemo, my daughter, who was with her, actually told one of the residents who started coughing, that he should just stay out. He said they were allergies, but she was adamant and kept him out,I think.I say, NO ONE should feel hesitant when it comes to possible serious consequences.
Good luck to Harvey and you and your family.
Urmila

]]> By: Terry Hamblin http://www.journal.clltopics.org/2008/03/24/this-too-shall-pass/#comment-166 Terry Hamblin Tue, 25 Mar 2008 16:26:24 +0000 http://www.journal.clltopics.org/2008/03/24/this-too-shall-pass/#comment-166 Been so busy lately that I only just got round to reading about this. My thoughts and prayers are with you at this moment. Terry Been so busy lately that I only just got round to reading about this. My thoughts and prayers are with you at this moment.

Terry

]]> By: Anne Amster http://www.journal.clltopics.org/2008/03/24/this-too-shall-pass/#comment-165 Anne Amster Tue, 25 Mar 2008 15:59:12 +0000 http://www.journal.clltopics.org/2008/03/24/this-too-shall-pass/#comment-165 Our thoughts & prayers are with you as you continue this journey - knowing Harvey going so slowly on the treadmill is tough vision, but the fact that he is up & doing it is wonderful. Your strength & his tenacity will see you through this time. Sorry to hear about the dirty coat, but I do hope that the nurses did something about it. Amazing with everyone's fastidiousness to cleanliness around there that it happened at all. Much love - Anne & Alan Our thoughts & prayers are with you as you continue this journey - knowing Harvey going so slowly on the treadmill is tough vision, but the fact that he is up & doing it is wonderful. Your strength & his tenacity will see you through this time. Sorry to hear about the dirty coat, but I do hope that the nurses did something about it. Amazing with everyone’s fastidiousness to cleanliness around there that it happened at all.

Much love - Anne & Alan

]]> By: Dorothy http://www.journal.clltopics.org/2008/03/24/this-too-shall-pass/#comment-164 Dorothy Tue, 25 Mar 2008 15:20:28 +0000 http://www.journal.clltopics.org/2008/03/24/this-too-shall-pass/#comment-164 Wishing you both all the best, from a beautifully warm spring day here in Spain! I want to thank you for helping us through our first year of CLL and hope Harvey's journey is totally successful. Wishing you both all the best, from a beautifully warm spring day here in Spain! I want to thank you for helping us through our first year of CLL and hope Harvey’s journey is totally successful.

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